The Joubert Syndrome Foundation Corp. is an international network of parents
who share knowledge, experience, and emotional support. The group offers a networking list, newsletter, and a biannual conference. The corporation plays an important role in educating physicians and their support team as well as increasing public awareness. We want to acknowledge our blog has been offline for a few years but fear not for we will bring back quality, relevant, and authoritative information to better educate users like you succeed online. It is our mission to help you better understand how to help your loved ones with this rare disease. If you have questions, comments, or concerns reach out to our team members via the comment sections.
Thank you,