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Sensory Processing
Gus Olson, MS, OTR, Escanaba, MI

Joubert Syndrome Foundation & Related Cerebellar Disorders Professional Advisor Committee Member

An occupational therapist trained in sensory processing sensory integration is best able to assist with assessing this area. Nearly all children with Joubert Syndrome will have sensory processing disorders. This includes how we use and interpret our senses such as hearing, seeing, touching, and tasting. It also includes information from the muscles and joints (proprioception) and information from movement and gravity (vestibular input). Following a "Sensory Diet" that is giving a variety of input (tactile, proprioception and vestibular) to your child on a regular basis throughout the day will assist the brain to be in a more ready state to learn. Some techniques such as deep pressure, joint compression, trampoline play, use of a weighted vest, ankle or wrist weights or the use of rotational equipment are just some techniques that may be incorporated into a child's routine as part of a "Sensory Diet". Some individuals may participate in a technique known as the "Willbarger Protocol" , i.e. being brushed with a corn brush followed by joint compression. Any sensory diet or specific sensory technique should first be evaluated by an occupational therapist trained in this area. The success of a sensory diet is via team work of the parents, all therapists (PT,OT,Speech etc.), and the school staff. Sensory diets, to be successful do not occur in a vacuum and should continue throughout the day with the support of all persons involved.


Sensory processing and how it affects learning and behavior
Mary Ann Trott, MA, Albuquerque, NM

Joubert Syndrome Foundation, Corp. Professional Advisor Committee Member

Everything we do is based, to some extent, on our ability to process sensory information. The information we receive from seeing, hearing, touching, tasting, and smelling as well as the information we receive from our muscles, tendons, and joints (proprioception) and information about gravity (vestibular) is sensory information. The information is received by the eyes, ears, skin etc. and is interpreted by the brain. The brain must then be able to organize and use that information. The brains use of sensory information is what allows us to understand and react to our environment and to learn from that environment.

Our brains also use sensory information to modulate our alertness. This modulation allows us to maintain an appropriate level of alertness to meet the demands of the day. For example, we first wake up, then we need to pay attention while we drive to work, we need to be calm enough and alert enough to do all that is required of us during the day and finally we need to calm ourselves to fall asleep.

Some children, particularly those who have neurological impairments (such as Joubert Syndrome) do not process sensory information in a way that is comparable to the majority of their peers. These differences of difficulties may affect the way children behave and learn. Some children may be very fearful or cry easily. Others may be very picky about things that come in contact with their skin. Some children are unwilling to participate in movement activities others may be over active. They may have difficulty in reading, writing legibly, copying from the board or understanding what is said. Some children seem to be driven to go through certain rituals such as rocking, wrapping themselves up very tightly or wearing certain clothing items. It may appear that these children are very controlling and aggressive or very passive. It is important to understand that these are not learned behaviors but neurological responses that an individual is not able to control.

An occupational therapist who has neurodevelopmental or sensory processing integration training is the professional who is best able to determine if a child has a sensory processing disorder. An occupational therapist can also provide treatment. Teachers do not often have information about sensory processing and it is important for them to understand that certain behaviors and or abilities are related to neurological process rather than a behavior one. This understanding will also help to determine how best to deal with and treat the problem.

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The views expressed do not necessarily reflect those of the donors. The articles, announcements, and resources included on this website are for information only and should not be considered as medical advice. Please always consult your physician for medical advice. The Joubert Syndrome & Related Disorders Foundation does not endorse any product, service, or theory referred to on the website.
 

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