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The Joubert Syndrome Foundation & Related Cerebellar Disorders offers a quarterly newsletter filled with exciting news and great information.

Here is what is in the Fall 2008 Volume 17, Issue 4 Newsletter:

Presidents Letter ... page 1

JSF Regional Coordinators & State Contacts ... page 2 - 3

Become Part of JSF & RCD... page 4 - 5

Conference Information ... page 6

Family Updates ... page  7 & 8

Helpful Websites and Information ... page 7 & 9

How You Can Help ... page 10

JSF & RCD Items ... page 11

Professional Advisors back cover

Insert: JSF & RCD Order Form

If you would like to read more about these and other interesting topics in our Foundation's quarterly newsletter, please join our membership.  Fees are $35.00 for US residents, and $40 for international residents (paid in US currency).  Your membership fee also entitles you to other JSF&RCD mailings.

Please send your check to:
Joubert Syndrome Foundation & Related Cerebellar Disorders
c/o Janet Gundling
8 Ash Road
Jackson NJ 08527


 

When making your payment, please indicate you are joining our membership.  Please include the following information along with your payment: your name, address, phone, fax, email address, effected child(ren) name(s) and birth date(s). 

If you would like to submit a "Getting to Know You", "Family Update", article or anything you would like to share with others for
The Rainbow,  newsletter,
please send an email to Janet Gundling

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