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Thank you for taking time to
visit our website. For over 18 years, the Joubert
Syndrome & Related Disorders Foundation has been helping families all around
the world. The
Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The
foundation offers a networking list, newsletter, and a biennial conference.
The Joubert Syndrome & Related
Disorders Foundation plays an important role in educating physicians and their support teams as well as increasing public awareness. The
Joubert Syndrome & Related Disorders Foundation is a nonprofit organization.
This website is funded entirely by private contributions made by members and friends of the
foundation.
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The views expressed do
not necessarily reflect those of the donors. The articles,
announcements, and resources included on this website are
for information only and should not be considered as medical
advice. Please always consult your physician for medical
advice. The Joubert Syndrome & Related Disorders Foundation does not endorse any product, service, or theory
referred to on the website.
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